love_me_some_reddit t1_iwjmbjg wrote on November 16, 2022 at 2:51 AM

Reply to comment by Batman_MD in World’s first stem cell treatment for spina bifida delivered during fetal surgery, in California. Three babies have been born after receiving the world’s first spina bifida treatment combining surgery with stem cells. by technofuture8

I hope so as well. I don't hold out much hope though. The best way I can help right now is to talk to parents of children with spina bifida. Help them prepare for their child getting older and what comes along with it. Man, I wish I could make that a job!

Take me for example. I played basketball with my friends growing up, I walked stairs, and I did most things everyone did. Albeit with a lot of challenges. As I aged my body was taken away from me. I was not prepared for that. So many others will not be as well. They need help understanding the progression. I wish I could reach them all, or get the ones I reach the ability to look beyond 10 years.

Batman_MD t1_iwjpl45 wrote on November 16, 2022 at 3:17 AM

It sounds like you’re doing a pretty amazing effort to help people that are going to go through what you have. Who says it isn’t a job? Look into SB outreach programs and if there isn’t anything…maybe that’s your calling? Its definitely not easy, but it sounds like you have a passion for it and the drive to do it.