unbannabledan t1_j5uq9cc wrote
It’s terrifying to think that ALS patients are this mentally functional but absolutely trapped in an unusable body. It has to be one of the worst diseases.
phoenix6315 t1_j5uufho wrote
My dad had a specific form of ALS that presented with frontotemporal dementia. To this day, I don’t know if it was a blessing or a curse. He seemed to have a very limited understanding of what was happening and eventual outcomes.
Themasterofcomedy209 t1_j5xi4eo wrote
Probably both, my grandfather had dementia and while it’s definitely partially a blessing he had this carefree childlike state of mind, he was still aware chunks of his life were missing and couldn’t get them back
BoogerVault t1_j5v0i38 wrote
Also consider that this woman was VERY lucky to be alive after eight years. Most patients are completely locked in after just a few years. She seems able to breathe on her own, and even retains some muscle control. Extremely rare.
ArcherBTW t1_j5xp0g9 wrote
My grandpa made it like 25 years pretty much fine until the 26th took everything. It was horrible.
There are many people in this would I would say I despise with every fiber of my being, but I would wish this on none of them.
BoogerVault t1_j5ykfwj wrote
Sorry to hear that, and it sounds really rough. Hopefully research will make some significant progress in the near future.
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