Flaky_Ebb2465 t1_j5bwkty wrote on January 21, 2023 at 9:54 PM

Reply to comment by CrohnsBoyTheThird in Currently in Hospital with Severe Crohn's Disease - AMA ! by CrohnsBoyTheThird

I reallllllly appreciate your response! I have talked to his doctors about it (USA). He gets random stomach cramps and I cannot find a correlation of what could be causing it. It's maybe 4 times a year (he is 12, this started about 2 years ago and is less frequent every year). Doctor's did ultrasound and ran tests (thought he had appendicitis at first) said he was healthy. We eat very healthy, eats tons of veggies with his proteins. We cut out milk and cheese from his diet. He has never had soda or caffeine. Lots of water. Rarely ever has diarrhea. So I just automatically get freaked out anytime he gets stomach cramps. I will absolutely be bringing this up at his next appt. Thank you for your education on this. I never have stomach issues so I am not very knowledgeable, I've researched but talking with someone with personal experience is very appreciated! Sending you hugs and hoping you feel better soon!!

CrohnsBoyTheThird OP t1_j5bz3tv wrote on January 21, 2023 at 10:11 PM

Don't worry too much. Stomachs hurt regularly in healthy people too !

I totally understand the worry though, but the good thing about Crohn's is, if you're not sure you have it, one day you will be certain.

The disease is still reasonably rare only 1 in a 1000 people will have it so the odds are in your favour - just keep an eye out just in case !

Preventative measures are a good place to aim, but no one can agree on any hard and fast rules to prevent the disease occurring in the first place. The few we have are below:

. No nicotine or tobacco use.

. Regular exercise

. Limited processed food.

Please do some careful and diligent cross-checked googling to make sure I haven't missed anything out above and try to ignore the conspiracy big pharma peoples advice, they convinced me to go off my meds and I lost a year of my life !