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Abishek_Muthian OP t1_iuujzyr wrote

Reply to comment by gbraide in When I was 32, I was told that my bones were like that of an 80 year old. I have built a web application to track bone health and monitor treatments for those like me. No sign-up, No personal data collected, Completely Free and Open-Source. by Abishek_Muthian

I understand your pain(literally) my friend.

There's a sense of cosmic injustice when you see that all other patients near you are twice your age.

I suspect that Osteoporosis, Osteopenia currently get only end-of-life treatment as only elderly population get it and people like us are rare.

But, Majority of world population is going to be old by 2050 so its in best interest for everyone to start investing in bone health research right now.

Anyways, Some of my bones are in Osteopenia category as well and our main goal should be to not let it become Osteoporosis as well. Please use Bone Health Tracker with your scan report and submit data for research.

Get in touch with me and I'll help you with it.

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gbraide t1_iuvg3ci wrote

Thanks, I uploaded my data. My scan gave me extra information not required by your site for the femur, I have been given alongside the neck, troch & shaft. Not sure if that data is useful.

I can only speak from my viewpoint of a white British male that every bit of research I found, medical paper, support network seemed to be centred around the elderly or menopausal women. The health service here in the UK is fantastic however stretched to the limit in funding. Something "frivolous" such as a dexa scan is so low down on their services that I had to persistently request something to find out what has gone on. I am taking over the counter calcium tablets (recommended by a UK charity - royal osteoporosis society), upped my calcium intake, started strength training to load up my bones but not given a great deal further. I have seen talk of hormone levels have some impact on this but again I feel I will be given short shrift on this by my doctors. It has been a year since my break and they have booked an appointment to see me in a couple of weeks. Are there other avenues that I should be pushing for?

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Abishek_Muthian OP t1_iuvib5s wrote

Thank you very much, I will add support for that extra data with you can share the assessment section with me, I will message you in the chat later. The BMD report specs seem to change a bit with different countries, Although I have included all major bone sites from my research.

As for your condition, I believe your doctors have come to a conclusion that calcium intake could fix it before trying out the steroids; The tests are only done annually and I see only minor improvements with my osteoporosis but some decent improvements with osteopenia over past 5 years with steroids.

But steroids would like have side effects in the long run and so calcium+exercise seems like the best bet for your Osteopenia and likely what the doctors think too. You'll see a change next year.

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