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47q8AmLjRGfn t1_izfogzx wrote

Great advice. Comments from the medical side tend to be casual during a conversation and it's not stressed enough how important it is to keep moving.

Thankfully, there are some great support websites like smartpatients where others do stress the importance in their experience. I do know they get you out of bed as soon as possible to get moving, whilst plugged into all the machines in ICU.

The info coming from the hospital is not complete. I'm on the third FLOT session tomorrow and I've only just found out that regardless of how much the tumour shrinks they still remove the tissue which was affected and shown in pre chemo pet scans / laprascopy etc. I've spent a long time trying to find extra treatment which will further shrink the tumour with the attitude to minimise surgery. A patient I'm talking to online has finished her FLOT , CT shows no tumour and she was excited to think that means minimal surgery.

Appreciate the advice, thank you.