Thank you for sharing your story! I hope your body is treating you well - you certainly do your part. It’s super cool to meet someone with so much in common, down to the rice krispy neck haha (Im not diagnosed with spina bifida occulta though). I remember swearing up and down that my waist curved differently on each side - welp.

I especially appreciate the recommendations: I was only diagnosed months ago after losing weight. Due to my poor lifestyle/rapid weight loss, all of my muscles are incredibly weak. My arms shake when I take out a damn garbage bag! Aside from PT and osteopathic manipulation, I haven’t learnt or done a lot for myself. Yet!

My pain has gotten better with daily exercise and stretching whenever I get the chance. I’m working on tolerance as well though - I feel constant pain but it’s likely in my head. My job requires me to look down all the time (despite my work-arounds) so I have to learn to be okay with it anyway!

I might look into ballet! I’ve been wanting to challenge myself and move into something new. I will definitely have to find some brains to pick myself, PT was waaay too expensive for me. Again, thank you so much!!