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AMC4x4 t1_iyichkv wrote

Yup. My mom had Lewy Body, but it was so frustrating because the doctors couldn't even give an actual diagnosis. But it was so clear that's what it was - from seeing people in the dark (which started six or seven years before any other symptoms materialized), to the red nose and sniffles, to digestive issues, to confusion that came and went, until things got really bad.

There definitely needs to be more education to the public about all the forms of dementia. It's a horrible, horrible syndrome, and anyone with a family member going through it, it's like a "secret society" where you know what someone else went through if they had it, but society at large has no idea if they haven't known someone affected by it.

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