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ybhakta99 t1_jeask9p wrote

I work at the ALS Hope Foundation in the research division at Temple Health Sciences Campus and I can state that our clinic has an expert team led by Dr. Terry Patterson. She has expertise in neuromuscuar disorders. Whats different is that this is a multidisciplinary clinic which means that physicians, PTs, OTs, Mental Health RN, Nurtironist are all available to the patient on the same visit and through the diagnosis process.

Heres our website: https://www.alshf.org/

Please let me know if you have any questions. Wishing you and your family get through this time smoothly!

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pleeplious OP t1_jeb1nlp wrote

Thank you so much for this info! I appreciate it so much!

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Funfruits77 t1_jebkcsx wrote

I cannot recommend Dr Terry Patterson enough. She is unmatched as a doctor in this field. Her knowledge, care and understanding are as deep and vast as the oceans. She has treated someone important to me for 20 years and allowed her to maintain a great quality of life. This is the answer you are looking for. She is one of the leading researchers in this field, she is one of the beneficiaries of the Phillies ALS benefit. There should be a shrine built in her honor someday.

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pleeplious OP t1_jebvtup wrote

Thank you for the suggestion so much!!! Happy to live in a part of the country that has these great places!!!!!!

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bms212 t1_jebkr2m wrote

I will second the ALS Hope foundation, but also recommend the group at Jefferson. The treatment Jeff is using is groundbreaking and has had some excellent results in delaying progress. Good luck during this difficult time.

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Funfruits77 t1_jeblajv wrote

Dr Patterson is absolutely the right answer. I am thankful for her every day and have been for close to 20 years. Absolutely the best I have only the most wonderful things to say about her she is a treasure.

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Funfruits77 t1_jeblbfx wrote

Dr Patterson is absolutely the right answer. I am thankful for her every day and have been for close to 20 years. Absolutely the best I have only the most wonderful things to say about her she is a treasure.

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