Viewing a single comment thread. View all comments

pleeplious OP t1_jeb1nlp wrote

Reply to comment by ybhakta99 in Parent is getting referred to Penn Neurology for suspected ALS. Anyone here have a recommendation regarding specific doctor? by pleeplious

Thank you so much for this info! I appreciate it so much!

6

Funfruits77 t1_jebkcsx wrote

I cannot recommend Dr Terry Patterson enough. She is unmatched as a doctor in this field. Her knowledge, care and understanding are as deep and vast as the oceans. She has treated someone important to me for 20 years and allowed her to maintain a great quality of life. This is the answer you are looking for. She is one of the leading researchers in this field, she is one of the beneficiaries of the Phillies ALS benefit. There should be a shrine built in her honor someday.

9

pleeplious OP t1_jebvtup wrote

Thank you for the suggestion so much!!! Happy to live in a part of the country that has these great places!!!!!!

5

bms212 t1_jebkr2m wrote

I will second the ALS Hope foundation, but also recommend the group at Jefferson. The treatment Jeff is using is groundbreaking and has had some excellent results in delaying progress. Good luck during this difficult time.

5