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rclaybaugh t1_j0x6l0z wrote

Unfortunately only 1 of the participants had the dystrophic version of the disease, all others had the recessive, simplex version. I think we should hold off on full judgement until it's proven right. Though as someone with this, I'm very excited.

Edit: I'm wrong, disregard this comment

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drareaman t1_j0xakgr wrote

According to the study “all patients had recessive dystrophic epidermolysis bullosa except for one who had dominant form.”

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the_real_mvp_is_you t1_j0xeprg wrote

If this was treating EBS then the published results would have said that. Having DEB was definitely a criteria when they were recruiting. I saw the recruitment go out from DEBRA.

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rclaybaugh t1_j0xkkf1 wrote

You're totally right, I was mistaken. Apologies

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the_real_mvp_is_you t1_j0xpesl wrote

No worries. There are a lot of sub types of EB and it can be hard to keep them all straight if you're not living with it, or studying it.

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