Viewing a single comment thread. View all comments

mascaraforever t1_j0y4q7f wrote

I followed two kids with the more severe version of this disease on IG. Both have since passed. Advances like this make me so happy but it’s bittersweet. If anyone is on IG, there’s an account called “Special Books for Special Kids” which features people with all kinds of different disabilities. The couple who run it are the most kind hearted souls and I’ve learned so, so much from it.