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braellyra t1_j2v9g8q wrote

Reply to comment by discgman in Immuno-suppressants may negatively affect SARS-CoV-2 antibody responses. In a study on autoimmune inflammatory rheumatic disease (AIRD) patients, neutralizing antibody levels were significantly lower for AIRD patient than in controls. Arthritis treatments were risk factors for reduced responses by glawgii

I was told not to stop my meds, since I flare really easily and I’ve already failed 2 DMARDs (infections and frequent stopping due to the infections which then made them less effective against the flares) ugh. RA is just the gift that keeps on giving.

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smokinsuzy2000 t1_j2wl0b8 wrote

I'm on immunotherapy for RA and Regeneron reached out to me to say not to take any vaccines. So I said, right I shouldn't take live vaccines. Their reply? No vaccines. I couldn't believe that coming straight from big pharma.

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braellyra t1_j2x2ncn wrote

Woah, that’s a bit ridiculous. My rheumatologist—and every rheumatologist I’ve spoken with since getting diagnosed almost 10 years ago—has said the more non-live vaccines the better, and I should get vaccinated against as many things as I possibly can. Maybe it varies by the specific action of certain RA meds? (DMARDs vs TNF blockers vs etc)

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libananahammock t1_j2xtv4s wrote

I have scleroderma and my rheumatologist said the same thing. Even said that my husband and kids should be up to date on their covid and flu vaccines to help protect me as well

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GnomieOk4136 t1_j2xq35x wrote

I was told not to stop the first time, and I ended up having reduced response. The second time I did stop, and I got the jou of a flare and a full blown Covid shot response at the same time. Most miserable month in my memory! My doctors were VERY clear though that I had to have the vaccines and needed to be extraordinarily careful even after I got them. RA with biologics makes our risks so much higher. Worst gift ever!

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