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sterboog t1_jaeqym5 wrote

This is clearly a SCAM.

The first post was them saying "I have this thing and I'm going to kill myself (physician assisted suicide)" over a non-terminal condition.

Now its "It can all be OK - all I need is $4 mil" and have 'suggested' a gofundme as an idea.

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Archangelthrowaway OP t1_jaevawi wrote

I understand you’re concerned but it’s opposition like this that is the reason for downplaying patients’ suffering with empty nose syndrome in the first place. I’m free to share my story and ask for advice. How else are people with medical conditions that have no cure supposed to go about solving it if they don’t ask the public for help? Clearly doctors and lawyers aren’t doing anything. I’m basically relying on empathy from strangers and researchers at this point to keep going. I can ask for advice..

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Archangelthrowaway OP t1_jaew5b8 wrote

PSA: if someone wants to donate $4 million I wouldn’t take the money. I’d ask them to contact wake forest university’s institute of regenerative medicine and donate on behalf of turbinate research for turbinate transplants. Is that enough proof for you?

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sterboog t1_jaewi2r wrote

No, because not only is that an unlikely scenario, but those are just words until you post notarized transaction records to prove it. It also sounds like you'd take the money because of the gofundme comment.

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Archangelthrowaway OP t1_jaewwni wrote

What is an unlikely scenario? That I am in contact with researchers at a university about a cure for a rare medical issue? Patients do that all the time when hospitals fail them.

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sterboog t1_jaex5yg wrote

What? All I'm saying is that you're feigning a disease, trying to go viral on reddit to drum up support in the hopes of leveraging that into a successful gofundme so that you can make a cool 4 mil.

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Archangelthrowaway OP t1_jaexmi2 wrote

Ahhh yes because no one in the United States has ever been failed by the medical system and every medical ailment has a cure so no one should ever go about finding a cure their own way backed by a legitimate research university (WFIRM) …got it …. /s

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cptbeard t1_jaf0nph wrote

yes "clearly", what a keen eye. I'll be clutching on to my millions and not contacting any universities.

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