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cardcomm t1_it4n4ez wrote

>Don't mess around and smile or say something like "fine" if one of those doctors asks how you're doing--they will write it down and it will go in your file which will look like the doctor thinks you are without pain

This is huge!!

If you need disability, say the right things to the doctors! What they write down matters. A LOT.

She needs to express her limitations to every doctor she sees.

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EmulatingHeaven t1_it56ygt wrote

Yup! It’s depressing and the only way to keep living is to focus on the good, but that doesn’t help you with the doctor. I found myself downplaying my pain at the doctor (well, and I super dosed my pain meds to be able to function at the appointment) so I started keeping a pain diary. It is the most depressing and bleak shit I’ve ever done, but it got my doctor to take me seriously and look further into it.

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