SaintsStain

SaintsStain t1_j5e45de wrote

( UK chronie here )

Your specialist or IBD nurse should be able to request antibody screening - I believe before you start Humira. Mine was really struck about it and insisted on re-testing before putting me back on Humira (tried usteki for a while) incase I developed antibodies.

You know your health best & I’m not trying to suggest your specialist missed anything - just that it may be beneficial to request Antibody screening before beginning your next biologic or biosimilar (if you do end up switching).

Sometimes my docs miss one or two things for a couple weeks because we are complex, and the NHS is drowning right now (god bless it). Mentioning it myself guarantees a slightly better quality of care/them remembering - and they never seem offended by my asking.

Wishing you all the best + spoons.

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SaintsStain t1_j5e3m0e wrote

I just wanted to extend support after seeing you got mod-removed in the crohns forum, but mods removed my comment for not containing enough “?”, which I wasn’t aware was a rule?

I’m sorry this got removed for “not being rare enough”- but a car salesperson passes the subreddit rules? That seems like pretty clear bias in moderation?

Keep pushing (or, not pushing?)

Since I have to include a clear & direct question to avoid the power hungry mod : do you have a favorite flavour of ensure / fortisip / meal replacements ?

I’m also 12-ish years in with CD, Humira is helping but weight is the last thing I can’t get ahold of/control. I’ve tried most meal replacements and haven’t found any that are half decent yet.

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